A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia
Thalassaemia is one of the commonest genetic blood disorders in the world. It is characterized by inadequate globin chain synthesis, leading to ineffective erythropoiesis, severe anaemia and chronic disease in children and adults. A child with thalassaemia requires lifelong regular blood transfus...
Saved in:
| Main Author: | |
|---|---|
| Format: | Thesis |
| Language: | English |
| Published: |
2013
|
| Subjects: | |
| Online Access: | http://eprints.usm.my/37577/2/24ms_Dr._Suria_Emilia.pdf |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| id |
my-usm-ep.37577 |
|---|---|
| record_format |
uketd_dc |
| spelling |
my-usm-ep.375772019-04-12T05:26:09Z A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia 2013-11 Othman Tan, Suria Emilia RJ101 Child Health. Child health services Thalassaemia is one of the commonest genetic blood disorders in the world. It is characterized by inadequate globin chain synthesis, leading to ineffective erythropoiesis, severe anaemia and chronic disease in children and adults. A child with thalassaemia requires lifelong regular blood transfusion in order to prolong survival and reduce extramedullary haematopoiesis. As any other chronic illness, thalassaemia does not only affect patient as an individual; it also involves variety of emotional and psychological burden to the parents and family as a whole. Unfortunately, there are very few studies done worldwide to assess parental heelth related quality of life (HRQOL) in transfusion dependant thalassaemia which is the reason why this study is important. 2013-11 Thesis http://eprints.usm.my/37577/ http://eprints.usm.my/37577/2/24ms_Dr._Suria_Emilia.pdf application/pdf en public masters Universiti Sains Malaysia Pusat Pengajian Sains Perubatan |
| institution |
Universiti Sains Malaysia |
| collection |
USM Institutional Repository |
| language |
English |
| topic |
RJ101 Child Health Child health services |
| spellingShingle |
RJ101 Child Health Child health services Othman Tan, Suria Emilia A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| description |
Thalassaemia is one of the commonest genetic blood disorders in the world. It is
characterized by inadequate globin chain synthesis, leading to ineffective erythropoiesis,
severe anaemia and chronic disease in children and adults. A child with thalassaemia
requires lifelong regular blood transfusion in order to prolong survival and reduce
extramedullary haematopoiesis. As any other chronic illness, thalassaemia does not only
affect patient as an individual; it also involves variety of emotional and psychological
burden to the parents and family as a whole. Unfortunately, there are very few studies
done worldwide to assess parental heelth related quality of life (HRQOL) in transfusion
dependant thalassaemia which is the reason why this study is important.
|
| format |
Thesis |
| qualification_level |
Master's degree |
| author |
Othman Tan, Suria Emilia |
| author_facet |
Othman Tan, Suria Emilia |
| author_sort |
Othman Tan, Suria Emilia |
| title |
A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| title_short |
A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| title_full |
A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| title_fullStr |
A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| title_full_unstemmed |
A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia |
| title_sort |
pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in hospital usm, malaysia |
| granting_institution |
Universiti Sains Malaysia |
| granting_department |
Pusat Pengajian Sains Perubatan |
| publishDate |
2013 |
| url |
http://eprints.usm.my/37577/2/24ms_Dr._Suria_Emilia.pdf |
| _version_ |
1747820668041297920 |